I’ve already heard others make the mistake. I know they meant no harm, were actually trying to be considerate and understanding, but it’s not how things are. During conversations, they’ve used those words. “Since he’s sick…”, referring to Jedi.
He has a medical condition. One I wish we didn’t have. I wish we never had to step a single foot inside a hospital. I wish we didn’t have to go through multiple finger pricks and insulin injections on a daily basis, for the rest of his life. I wish there was no reason for me to look up diabetes forums on the internet. I wish that with all my heart. If I could be the one instead of him, there would be no question.
The fact of the matter is, though, this is what we’ve been dealt. And if this is the most horrible crisis to befall our family, then we are lucky.
When I think of sick, I envision cancer. Terminal and spreading. Degrading diagnoses. Of diseases I can’t even begin to comprehend. These kids that have had their childhood placed on hold, or taken away entirely, lifted by little more than a prayer and hope. Of colds and flus and sitting on the sidelines. My son has a condition that was frightening to hear at first. It’s confusing and stressful. It forces us to contemplate the situation a little more, but there is no question about his tomorrow. He can run and play and is just as loud and energetic as ever.
It already angers me when people, even those well-intentioned, try to place him in this limiting bubble. There are kids out there that are really sick. My son is not one of them.
Except for yesterday, when he came down with a fever of 103. Then, he was sick. Because I guess he hasn’t been through enough this month.